December 7th, 2018

Today is also Pearl Harbor Day.  I suppose it’s been awhile since I’ve written anything.  At least here.

I’ve posted on other blogs, facebook, and our FB groups, but not here.

So, here’s December’s post.

Tonight, we go see our Granddaughter, Cassie, in a play, Death of a Salesman (I think).  High School rendition, so should be interesting.

JoAnne has been through two chemotherapy sessions.  A portion of each of those two were cancelled due, mainly, to low blood cell counts.  The first session was about six hours long. The second part of that session was supposed to last an hour, and was a week after the first infusion.  Unfortunately, she was suffering suddenly from a tooth ache, which turned also into an infection… likely due to lowered white blood cell numbers.

The second session last week on a Thursday went well.  But her blood work on this Wednesday (5 December) showed her white, red blood cells and the building blocks for those things (along with other chemicals I’m not as familiar with) were at a very low level.  Thus, they cancelled the second infusion (which should have been yesterday).

They want to give her a drug, called Newlasta, which will help to regenerate white blood cells, but it takes 14 days to function, and they need to give it after the second infusion.  So, that’s become a problem.  Now, she gets one more blood draw in a week or so (next Thursday), and then a doctor’s visit on the following Monday at which time we will be asking some questions, and hopefully there will be a “new plan” to get this accomplished correctly.

The next infusion will be after the doctor’s visit.  The GOOD news in all this, is the CA-125 blood test (Cancer Antigen test) is showing a drastic reduction in count.  It went from just over 70 to 50.  Her last tests over the course of time have been, June 2017 the CA-125 was 21, and a year later, this past June was 50.  This caused concern with us and the doctors.  In August it shot up to the mid-60s, and therefore the PET scan was ordered.

The PET scan showed not one, but TWO areas of concern.  An area somewhere between her liver and kidneys and a node on her left lung.

The next CA-125 tests were 68 and then 71 in September and October respectively.  (I might be off on the dates, exactly, but you get the gist of it).

In between all of this (September to Present), we’ve made three trips across country, back and forth, ran from a hurricane, visited Florida and came back to Colorado, where the chemo has commenced.

Two sessions are through, with some complications, but still plugging along.  We’re still very much alive, and still “Adventuring” when we can.

20 December should be our “half way point” on Chemo.  Meaning she is starting the third session.  Whether or not we get some stuff tacked on at the end, we’re not sure yet, but we’re going to be checking on that when the doctor’s visit comes to pass.  That will, if things go well, give us 3 more sessions or nine more weeks with chemo in those nine weeks, healing and doctor’s visits, blood work and dozens of miles on the car back and forth to the hospitals.

In the mean time, we miss our ship, Adventure, very much and find ourselves wishing for the house to rock us to sleep at night.  Instead, we have cold, snow on occasion, next door neighbors who can be loud (in the middle of the night for some reason….) hundreds of people everywhere, and us trying to avoid germs. HA!

Tonight, as I mentioned, we’re going to a HS play, where we will likely be exposed to a lot of germs again, because people always cough, sneeze and aren’t the cleanest of creatures.  JoAnne will bring a mask just in case, but hopefully won’t have to use it.  Not, that we honest believe that a mask is going to actually STOP germs from getting into your system anyway.  Doesn’t seem to help at hospitals where there are super bugs…

In the mean time, she’s been crocheting, reading and helping run the various Sailing and Cruising forums she is Admin on, and I’ve been re-learning Morse Code (I’m very rusty at it), and have built two radios to work on Ham Radio frequencies (20 and 40 meters) but haven’t an antenna to connect, and I’ve also been writing a complete role play game campaign for “Stars Without Number” ( a role playing game, set in the milled of the year 3200, in space for some friends in the Southport area).  All of this to “keep busy”.

Unfortunately, I didn’t really have room, nor the time, to grab my charts and sit down and work out courses for the Bahamas and beyond, but I figure it’s likely better to do that just before we go.  At this point, we’ve decided that if we can get back in late March, we will plan a trip down to Bahamas for the Spring, and head back before Hurricane Season hits… and we have a couple of friends who want to go along, who are both sailors.  It will help immensely to get us all there safely, and through that big hurdle of “several days of sailing”, so we can head home on our own when the time comes.

Last thing, I’m personally working on is my Celestial Navigation again.  I really want to grasp that stuff.  I think I’ve mostly got it, but now, I really need to practice it.

That is all for now, friends.  Until next time, Fair Winds!

 

 

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The Dance

limbo

noun (1)

lim·bo | \ ˈlim-(ˌ)bō  \
plural limbos

1: often capitalized an abode of souls that are according to Roman Catholic theology barred from heaven because of not having received Christian baptism

2aa place or state of restraint or confinement trapping travelers in an airless limbo—Sam Boal

ba place or state of neglect or oblivion proposals kept in limbo

can intermediate or transitional place or state the adolescent occupies a special human limboNew Republic

da state of uncertainty The graduate was in limbo for a while, trying to decide what to do next.

e: a dance or contest that involves bending over backwards and passing under a horizontal pole lowered slightly for each successive pass

Last month I spoke about our lives in the last few years, the boat, JoAnne’s cancer and right after that we were put on alert watching Hurricane Florence form off the coast of Africa and make the long trek across the sea, to finally visit the USA.

In the few weeks after publishing that entry in August, I spent a lot of time cleaning up the boat, getting her ready for the fall trip to the Bahamas.  Then Florence formed, and it appeared to be heading right for Southport, NC.  The news was all over the place on possible hit locations, the NHC was all over the place, the Spaghetti models were everywhere.  The only thing that was accurate was my own predictions that it would hit somewhere between Myrtle Beach and Beaufort, NC.  And I was accurate about that part.

JoAnne and I started preparing the boat for a hurricane, and finally on Tuesday just before it hit, we also received a call from her oncologist’s office back in Colorado.  We had four weeks to return to begin a treatment plan.  A PET scan had been ordered and taken care of the Friday before.  The doctors read the scans and decided she had some “area of concern” which the oncologist believed to be a recurrence.

On Wednesday morning, of “official, mandatory evacuation” and in light of a probably Category Four hurricane hitting full on in North Carolina, near to us, we packed the last of our belongings we’d not place in storage and I started the car, looked to JoAnne and said, “Where too?”

We had no idea where to go, which way to run or who would take us in for a few days.  With the car running, we called her Brother down in Florida and told him the situation, and he had us come to stay with he and his wife for a few days.  We knew we wanted to return to the boat before heading back to Colorado, and probably hit our storage locker once more for cold weather clothing, usually kept in storage in the summer.

We spent a week in Florida visiting with friends and her brother.  When we attempted to return to North Carolina, the rivers were just cresting, roads were out, flooded and bridges damaged, roads closed, and basically those who got home to Brunswick county were already close in, and had an idea of which roads to take avoiding the dangerous conditions (and road blocks).

Many made it home, but we could not. Our time was running out.

We made for Colorado.  Friends are caring for our boat, which suffered only minor, external damage.  Lost a solar panel, the bimini and it was damp below.  I have plans to head back there once we get JoAnne settled into a routine.

This past week was a mess with the doctors and insurance.  We argued with both for hours, until finally, the insurance company told the doctor’s office what we’d been saying all along; we do NOT need a referral to her oncologist (since she has been seeing him for four years) and we’re on Tricare standard which does NOT require ANY referrals for ANY outpatient care.

The doctors also told us, that there were two areas of concern, not one.  One area on her lung, and another somewhere between kidney and liver, very non specific.  We will find out how specific that is on this coming Tuesday.

Another CT scan was performed a few days ago, after the battles with Insurance and the Dr. office, and we now have more information.

Friday she was called and told that she will be commencing chemotherapy soon, after a port is installed and we see the doctor once more so we can work out a schedule and plan to fight this.  He told the caller to tell JoAnne that the lung issue is a “recurrence” rather than a new form of cancer (lung cancer perhaps).  He was unsure prior to the CT scan, but is more confident of his diagnosis now I suppose.

(Personally, I am NOT more confident yet, and have questions.)

At the beginning I put up a definition. The definition was for the word Limbo, a word I used in the previous blog entry from August.

Limbo, from the definition is a place… without a destiny or destination.

It’s also a dance…

Kind of like life.  Life is a dance or journey.  You never know when you’re young how the moves go.  You have to be taught.  Some of us, like me, never learned how to dance, I just listen to the music.  But, there are times when bending over backward to accomplish something important is how you get it done.  Going in the wrong direction to reach your destination can get frustrating.

Our destination is, and always will be, to sail the islands, from the Bahamas on to the rest of the Caribbean.  We have found that life isn’t really a “dance”, but a journey without a true “destination”.  The “Dance” part comes in at successive times in life, when you’re worried, when you’re up against some seemingly insurmountable task and just about ready to give up and quit, you Dance.

It can be a jig, a limbo, a foxtrot, or the twist.  Whatever it is, at the end, you will come out stronger, better, and more in tune with life.

JoAnne and I had a dance the last few days with Life.  It wasn’t a journey, it didn’t turn out to be a destination, merely a diversion.  We talked and discussed this dance, and found that we have decided that we will no longer live our lives around medical issues, we will deal with them around our lives.

After we get the plan in place, we’ll have about three weeks before the next chemo session.  This will give us time to travel back across country, see our boat, repair the damage, prepare her for winter (by dumping water, checking engine etc) and collect the Colorado Clothing we’ll need, and then return to our family and support system here.

Adventure has proven she can and will survive whatever Nature throws at her for now.  It’s not her time, and it’s certainly not OUR time.

So to our friends in Southport, Kevin and Debi, we thank you for looking after our home, Adventure, and WE WILL BE BACK SOON!   To our family, Especially Nick and Levi, thank you for your support.  To those we left behind in the disaster, you will rise up stronger.

And for us…. We’re going sailing again, very, very soon.

 

Florida – by car

We sat around discussing what to do a month or so back after a failed attempt to depart for the Bahamas.

Spending the day and well into the night sailing a long tack (40 miles total) off shore only to manage to make five nautical miles off shore gave me a reason to want to give up on sailing again.  That was a short lived thought though.  We sailed nicely under most sail and it gave me a lot of night experience, which was great.

Our extra crew member was disappointed, but he took off for California a few days later (and sooner I think than he’d originally intended).  But, in the end, all was good.  We got back in our own slip the next day and we’re back on the docks.

Our discussion turned to doing a road trip, which both of us are always up for.

So, contacting our son, who had wanted to meet us in February anyway, JoAnne and Nick planned a place to stay, dates, and so forth.  We also contacted friends there, and made a decision also to look at a second boat (maybe because it was supposed to have a new engine in it).

On the way to Florida, we were passing through Brunswick, Ga, and the car started acting weird, right after fueling up.  Finally, she sputtered and died at around 75mph going south on I-95.  We coasted almost two miles on the side of the road to get us closer to an exit, and presumably a tow truck.

I checked the car, the computer system, the gas (thinking I somehow stupidly put diesel into the gas tank, which I had not) and couldn’t figure it out right off.  It seemed like perhaps the ignition system was acting up, but I kept going back to the fuel system.  Eventually, we found a place that would take us ASAP and got a tow, and were towed to a little place within three blocks of four hotels.

As it turned out, the fuel pump failed.  Not sure why, but it did.  Ended up getting it replaced.  Wouldn’t get the parts until next morning, so we hiked with our bags to a hotel.  On the way out to hike to a place to eat, we spotted the street sign on the street the Hotel was located.

We spent two weeks and a few extra days bopping around from Ft. Meyers, to Tampa, to Largo and back over to St. Augustine.

Yeah, we’re cursed to remain in “Southport” forever, methinks.  Every time we’ve left Southport, something has happened to bring us back there.  Everyone says we’re fated to remain in Southport, NC.

Even our car seemed to find a home named Southport…. :rollseyes

We visited our friend, Ray (and his son, Dakota, as Ray’s wife, Amanda was out of town for work), the cats and peacocks down in the Ft. Meyer area, as he had a steel ketch he inherited.  I was considering buying it, but it wasn’t exactly what we expected, and I couldn’t see an easy way to move it. The engine likely had not been run in about 10 years.  Probably not a good engine at this point.  The rigging was pretty loose, a lower spreader having been rotted out and fallen off, leaving the majority of the standing rigging wiggly.  So, that was a “no”.  We did get to see Lake Okeechobee, rode on Ray’s boat, and found some cool Mexican food there.

We rode on Ray’s boat to see the sailboat, down the ICW towards Okeechobee.

We visited about half dozen breweries, ate out a bunch, JoAnne and the boys cooked at the AirBnB in which we stayed.

We had never stayed in a place like that.  Nor a place like this one in particular.  I’ve honestly never seen a place like the “Casa Loco”.

There is nothing better, sometimes than a picture, which it is said is worth a thousands words.  So, without further ado, here’s a few thousand words.

I’ll just leave those there.  The last one is the kitchen.  Those are Jello/cake molds, on the ceiling.  The second to last is the bathroom door…..

The bedrooms were covered in freaky “masks”, African, Spanish, Mexican, Demons… you name it.  I can’t imagine small kids sleeping in this house without having severe mental issues afterward. haha

We four, Nick, Levi, JoAnne and I, spent time on the beach, visiting places, friends and having a good time.

After “Casa Crazy” we went to stay with JoAnne’s brother, Paul and his wife, Cathy and met the new poodle pup named “Buddy” who is a biter. He nipped Paul, JoAnne, Cathy and me, drawing blood from all of us.  He’s a good dog, but he’s got to learn not to bite.

From Largo/Tampa we headed over to St. Augustine to visit with our friends from South Harbor Village Marina in North Carolina aboard “Enamoored”, Herb and Jan.  They left at the end of February, about the time we left, to go down to St. Augustine, and they found a nice slip there in the town.  We couple reasonably have walked from their boat to most places, if Jan and JoAnne both were up to the walking.  Instead we drove a lot to breweries and out to eat.

We visited Hurricane Patty’s, at River’s Edge Marina, and could see our friend’s (Stephen and Judy) old slip from where we sat to eat (they are up north somewhere now).  We had visited St. A’s before a couple of years back and stopped at River’s Edge to check the place out.

We stayed two nights with Jan and Herb and headed out early in the morning headed home for Adventure.  We discussed stopping at a hotel one more night (for a big bed, showers, hot tub, pool, and just to decompress) but that never happened.  I guess I owe JoAnne a night in a nice place somewhere with a big bed, showers, hot tub pool, or just decompressing. Haha!

Finally, we arrived back at our marina, tired and relatively warm.  That changed quickly because, well, apparently winter is nuts and it keeps coming back to bug us.

All in all, our adventures don’t have to be aboard “Adventure”.  We have just as much fun in the car as the boat, and it seems like it’s easier to do some times.  But, I don’t think we’re giving up the boat any time soon.


The last thing for this entry is a purely mercenary event for me, so bear with me one more moment.

Back in November, I published my first SF novel, the first is a series called “Estrellita Chronicles”, first book is called “Aftermath’s Children” and was a very, very long time coming.  I started writing that book in 1985 or ’86.  It was a collective work based on a role playing game that I ran as Game Master with friends back in the early to mid 1980s.

The book has been sitting around in mostly completely form now for many years, but I published it on Kindle.

This week, I completed the set up for paperback books, and yesterday (Friday, 9 March 2018) I posted the last files, cover changes and information for the book.  Today I finally got the price set properly.

So if you like Science Fiction and are interested you can get the book either as a digital version for Kindle (or kindle app, or Amazon Cloud reader) or paperback.  I’ll post the links here.  Normally, I don’t advertise anything with the blog at all or ask for anything, but I’d sincerely appreciate it, if anyone reads the book they write a short review on Amazon.  Here are the links, top one is for the paperback, the second for the digital version for Kindle.

https://www.amazon.com/dp/1973270501/
https://www.amazon.com/Aftermaths-Children-Estrellita-Chronicles-Book-ebook/dp/B077BFKQ5W

This is my Amazon Author Page:

https://www.amazon.com/Rick-Donaldson/e/B00Q514LD0

This is my author blog:

https://rddonaldson.wordpress.com

Please visit those and leave comments, and PLEASE do a review if you read the book, it helps to bring the book into focus for those visiting Amazon (and helps get me sales, and by the way, I make a couple of bucks off each book, not as much as you think an author makes!)